sturgeweber.org.uk Report : Visit Site

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- registered charity no. 1016688 welcome danny (centre) with his cousins on holiday who we are is a voluntary support group for families and adults affected by sturge weber syndrome, a rare neurological disorder. a registered charity, it was launched in 1990 as a independent group by the disability support organisation contact a family. sturge weber syndrome this is a rare disorder of unknown incidence and origin; although present at birth, it is not thought to be hereditary. sturge weber is usually indicated by a birthmark (port wine stain) somewhere on the face, usually involving the eye and forehead, also similar blood vessels on the brain, called an angioma. those with sw often suffer from epilepsy, hemiplegia (a weakness or stiffness affecting one side of the body, similar in appearance to that of a stroke), glaucoma and learning difficulties. symptoms usually occur in the child`s first year of life. membership membership is entirely free to professionals, anyone diagnosed with sturge weber syndrome and their families. aims to provide support and information on differents aspects of the syndrome and to raise both public and professional awareness of the condition. to promote medical research into the causes and treatment of this syndrome. a family weekend is organised every eighteen months when doctors and other professionals talk about relevant topics. a newsletter is produced and information leaflets are available. subscribe to: posts (atom) registered charity no. 1016688 main menu home about us history membership donating useful contacts (other groups) sturge weber clinic facebook & twitter pages supported by online shop calendar christmas cards "what's that on your face?" epilepsy and holiday insurance care act 2014 - a practical perspective news lands end to john o'groats awareness day forthcoming events give as you live teddies beartrice and beartie travel the world for fundraising current just giving fundraising events building your brain - angelina mills bbc1 19th may at 9pm next family weekend reports family weekend 2016 family weekend 2015 family weekend 2013 family weekend 2012 family weekend 2010 family weekend 2007 medical articles sturge weber explained glaucoma epilepsy port wine stains ketogenic diet frequently asked questions new literature financial aid benefits council tax - carers discount direct payments personal stories television interviews don't stare at my child ian willams talk at 2012 family weekend alexander's story - who underwent hemispherectomy matthew's story 2010 family weekend - a teenager who underwent hemispherectomy matthew after surgery - video brooke rowan family day 2010 presentation alice - a special little girl jacob's story leo's story a tribute to jill / registered charity number 1016688 / [email protected] burleigh, 348 pinhoe road, exeter, devon, ex4 8af / tel: 01392 464675 / fax: 01392 464675 content © / template by josh peterson / modified by ray girvan / powered by blogger . all photos reproduced with permission. --

URL analysis for sturgeweber.org.uk

http://www.sturgeweber.org.uk/p/about-us.html
http://www.sturgeweber.org.uk/2017/04/presentation-by-holly-mieville-hawkins.html
http://www.sturgeweber.org.uk/2010/08/independent-living-fund_15.html
http://www.sturgeweber.org.uk/2010/08/family-weekend-2007_17.html
http://www.sturgeweber.org.uk/2010/08/alice-special-little-girl_15.html
http://www.sturgeweber.org.uk/2011/12/current-fundraising-events.html
http://www.sturgeweber.org.uk/2012/09/teddies-beartrice-and-beartie-travel.html
http://www.sturgeweber.org.uk/2010/08/port-wine-stains-and-sturge-weber_15.html
http://www.sturgeweber.org.uk/2014/01/television-interviews.html
http://www.sturgeweber.org.uk/2012/01/fundraising.html
http://www.sturgeweber.org.uk/p/become-member.html
http://www.sturgeweber.org.uk/2014/09/epilepsy-and-holiday-insurance.html
http://www.sturgeweber.org.uk/2011/04/new-literature.html
http://www.sturgeweber.org.uk/2010/08/epilepsy-and-sturge-weber-syndrome_15.html
http://www.sturgeweber.org.uk/2017/11/calendar.html
raygirvan.co.uk

Whois Information

Whois is a protocol that is access to registering information. You can reach when the website was registered, when it will be expire, what is contact details of the site with the following informations. In a nutshell, it includes these informations;

Domain name:
sturgeweber.org.uk

Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 10-Dec-2012

Registrar:
Eclipse Networking Ltd t/a Eclipse Internet [Tag = ECLIPSE]
URL: http://www.eclipse.net.uk

Relevant dates:
Registered on: 11-Aug-1999
Expiry date: 11-Aug-2019
Last updated: 10-Aug-2017

Registration status:
Registered until expiry date.

Name servers:
ns1.eclipse.net.uk 212.104.129.4
ns2.eclipse.net.uk 212.104.129.133

WHOIS lookup made at 18:58:55 18-Jul-2018

--
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:

Copyright Nominet UK 1996 - 2018.

You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at https://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REFERRER http://www.nominet.org.uk

  REGISTRAR Nominet UK

SERVERS

  SERVER uk.whois-servers.net

  ARGS sturgeweber.org.uk

  PORT 43

  TYPE domain

DOMAIN

SPONSOR
Eclipse Networking Ltd t/a Eclipse Internet [Tag = ECLIPSE]
URL: http://www.eclipse.net.uk
Relevant dates:

  CREATED 11-Aug-1999

  CHANGED 10-Aug-2017

STATUS
Registered until expiry date.

NSERVER

  NS1.ECLIPSE.NET.UK 212.104.129.4

  NS2.ECLIPSE.NET.UK 212.104.129.133

  NAME sturgeweber.org.uk

DISCLAIMER
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:
Copyright Nominet UK 1996 - 2018.
You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at https://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REGISTERED no

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